Lived Experiences of PCOS Among Women in Odisha: A Qualitative Inquiry

Abstract

Polycystic Ovary Syndrome (PCOS) is a widespread endocrine disorder, yet often underdiagnosed and poorly managed, particularly in culturally diverse, resource-limited settings. This qualitative study used a phenomenological approach to explore the lived experiences of 32 women (aged 18–32) in Odisha, primarily unmarried, urban, and educated. Through thematic analysis of semi-structured phone interviews, five key themes emerged: awareness of PCOS, physical and emotional changes, prevalent misconceptions, health behaviors, and digital health use. Findings revealed gaps in awareness, delayed diagnoses, and persistent myths around medication, fertility, and cultural norms. Women reported symptoms like acne, hirsutism, irregular periods, and psychological distress, worsened by social stigma. However, many adopted coping strategies such as lifestyle changes, yoga, and digital tools like period-tracking apps. While these apps supported symptom monitoring, misinformation online sometimes created confusion. The study calls for culturally relevant, integrated approaches combining medical, psychological, and digital support to enhance PCOS care and promote open dialogue around reproductive health.